It’s November Baby!

I was going to make this a huge catch up post but honestly I can’t remember things back to August.

Sorry that I’ve been missing in action. I would like to say that I’ve been incredibly busy but, really, I’ve just not felt well and have not felt like posting. I’m still not feeling well but I’ve decided to end my months-long pity party and re-engage in life.

Here’s the update on stuff:

So it was super hot this summer and my room washot as hell. I spent a few months sleeping on the couch. Given my depressed state, I pretty much was on the couch 24/7. This screwed up my back, neck and left arm. Excruciating pain. I started getting therapeutic massages and my neck and shoulder were loosening up but my arm decided to go numb from my shoulder to my fingertips. This is all still problematic. My left arm looks like Dalmatian skin because I didn’t realize how hot the heating pad I was using until I had horrible burns.

I mentioned this issue to my oncologist when she said that I needed to get scanned again because if my cancer had spread, it could cause these issues.


I was scheduled for an MRI and completely failed it. I just can’t do it. I know now that if I have to have one, I need to be knocked out.

My oncologist then requested that I have a PET/CT scan but my insurance denied it stating that I have to have a chest/pelvis/abdomen CT and a bone scan first. Mostly to avoid the cost of the PET/CT. Those were scheduled for yesterday.

The bone scan went fine.

The CT didn’t go at all. It turns out that the contrast media for a CT is iodine based. I’m super allergic to all seafood and topical iodine makes me break out in an itchy rash. Not good. Next thing I know I’m being told to reschedule the CT and go to see my oncologist about the allergy premed prescription.

At this point, I’m pissed off. It says all over my chart on the fancy new system that I have a severe seafood allergy and NO ONE could see that the contrast media could be a problem???? FUCK!

I go down to see my oncologist and while I’m waiting I see that the medication protocol for avoiding an allergic reaction involves a HUGE amount of steroids. Considering these steroids gave me diabetes, I’m not too enthused about taking it.

Then I see my doc and all hell breaks loose. There was yelling. When I told her that I was uncomfortable taking the steroids and that I would need to consult with my hematologist she was like “why would we need to tell her?” What I came out of that meeting was that I was a pest and uncooperative and why didn’t I just do what she tells me!  I know she’s frustrated but I didn’t ask for any of this. I think she’s putting in another request for the PET/CT based on my allergy to the media.

All this drama because my arm hurts.


Things are almost the same. I had a mammo and ultrasound and the tumor is still the same size and they can’t feel anything else in there.


My tumor is trying to leave my body.

It was all sleepy and resting towards the back of my breast but about a month ago, we noticed that there is a hard lump that pokes up where my tumor is.



This is not good.

Eventually, the little beastie will push through my skin and create an open wound which is really not good for anyone, especially someone with immune system issues.

The announcement: surgery is back on the table.

I don’t know when. If you remember all the craziness from my attempted surgery last year, those issues still exist.

I will keep you all posted. I’m totally frustrated.

But hey! I’m seeing Kinky Boots at the Pantages in 13 days!




8 Comments on “It’s November Baby!”

  1. elizabeth lamar says:

    Oh wow, Pam. I am so sorry for all that you go through. Perhaps the surgery will be less invasive as the blasted tumor is closer to the surface. Let’s hope.


  2. heather murray says:

    I share with elizabeth the hopes that changes with the abominable tumor will make surgery less dangerous. I hope you are saving the illustrations from your blog to use in your upcoming book (right?!).

    Liked by 1 person

  3. Barbara DiCarlo says:

    Wow you have really had your hands full. Glad you have fun things to look forward to. I look forward to seeing you at taco Tuesday when I get there. Ciao, Barbara


  4. Lori Lewis says:

    Sending love from Colorado. SO sorry you have to go through all that crap – and that your doctor is being such a witch with a capital B. She obvi doesn’t know who she’s messing with! FIGHT ON!!! XOXO ❤


  5. Joyce cushnie says:

    I’m thinking about you cutie. Hang in there. Hope to see you soon!


  6. Sue Downing says:

    Oh boy. Saw your FB post the other day. Yesterday? About the mastectomy and lymph node ectomy. That’s quite a lot to take in. I guess in the benefit-risk analysis, removing a moving tumor now seems like a necessary move. That’s scary. Very scary.

    How’s your mom? I remember a time when it was her health we’d worry about.

    Wishing you inner strength, -Sue.


    • Pam says:

      I know! I had been told it would be a lumpectomy and then my surgeon caught me in the hallway and let me know about the massive change in plan. Sine the tumor is growing but has not spread they feel that this is the time to just get rid of everything.

      It is scary but the thought of being cancer free is super nice.

      Moms good. She’s had a bad arthritis flare up in her knee but she got a shot there yesterday and it seems to be working.

      I’m sorry about your contractor issues. That’s just f’ed up!

      Pamela Muzyka Sent from my iPad



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