It’s November Baby!Posted: November 1, 2014
I was going to make this a huge catch up post but honestly I can’t remember things back to August.
Sorry that I’ve been missing in action. I would like to say that I’ve been incredibly busy but, really, I’ve just not felt well and have not felt like posting. I’m still not feeling well but I’ve decided to end my months-long pity party and re-engage in life.
Here’s the update on stuff:
MY LEFT ARM
So it was super hot this summer and my room washot as hell. I spent a few months sleeping on the couch. Given my depressed state, I pretty much was on the couch 24/7. This screwed up my back, neck and left arm. Excruciating pain. I started getting therapeutic massages and my neck and shoulder were loosening up but my arm decided to go numb from my shoulder to my fingertips. This is all still problematic. My left arm looks like Dalmatian skin because I didn’t realize how hot the heating pad I was using until I had horrible burns.
I mentioned this issue to my oncologist when she said that I needed to get scanned again because if my cancer had spread, it could cause these issues.
I was scheduled for an MRI and completely failed it. I just can’t do it. I know now that if I have to have one, I need to be knocked out.
My oncologist then requested that I have a PET/CT scan but my insurance denied it stating that I have to have a chest/pelvis/abdomen CT and a bone scan first. Mostly to avoid the cost of the PET/CT. Those were scheduled for yesterday.
The bone scan went fine.
The CT didn’t go at all. It turns out that the contrast media for a CT is iodine based. I’m super allergic to all seafood and topical iodine makes me break out in an itchy rash. Not good. Next thing I know I’m being told to reschedule the CT and go to see my oncologist about the allergy premed prescription.
At this point, I’m pissed off. It says all over my chart on the fancy new system that I have a severe seafood allergy and NO ONE could see that the contrast media could be a problem???? FUCK!
I go down to see my oncologist and while I’m waiting I see that the medication protocol for avoiding an allergic reaction involves a HUGE amount of steroids. Considering these steroids gave me diabetes, I’m not too enthused about taking it.
Then I see my doc and all hell breaks loose. There was yelling. When I told her that I was uncomfortable taking the steroids and that I would need to consult with my hematologist she was like “why would we need to tell her?” What I came out of that meeting was that I was a pest and uncooperative and why didn’t I just do what she tells me! I know she’s frustrated but I didn’t ask for any of this. I think she’s putting in another request for the PET/CT based on my allergy to the media.
All this drama because my arm hurts.
Things are almost the same. I had a mammo and ultrasound and the tumor is still the same size and they can’t feel anything else in there.
My tumor is trying to leave my body.
It was all sleepy and resting towards the back of my breast but about a month ago, we noticed that there is a hard lump that pokes up where my tumor is.
This is not good.
Eventually, the little beastie will push through my skin and create an open wound which is really not good for anyone, especially someone with immune system issues.
The announcement: surgery is back on the table.
I don’t know when. If you remember all the craziness from my attempted surgery last year, those issues still exist.
I will keep you all posted. I’m totally frustrated.
But hey! I’m seeing Kinky Boots at the Pantages in 13 days!