Good news but not good enough

I went today for my lab appointment and oncology visit.

Nothing new with oncology.  She’s happy with test results that show nothing.  Yay!  My mastectomy side and arm have been bothering me for the last few months so she felt it and said “yes, it’s lymphedema, it’s forever, just get used to it.”  Great.  My upper arm has been itching today – but the nerves are all gone so when I scratch I can’t feel it.  It’s frustrating.  I’ll get used to it.

My lab results were good but not good enough to come out of isolation and go out to eat.

(although I cheated today and got brandon’s diner…mom & I were starving after being at the hospital all morning)

My blood count was 9.9 – so normally that means no transfusion but I’m not feeling a 9.9.  So I am going back on Friday, super early morning, and getting another lab count done.  If it is lower than 9.9, I’ll get one or two units.  Luckily I have nurses that know me and have ordered two units just in case so I don’t have to wait a day before the blood can be ready.  If I don’t need it, it will just go back to the general blood supply.  I’m starting to get a low fever, my pulse is a little elevated and when I do my blood sugar tests, the blood looks like fruit punch instead of reddish/black.  So I’m thinking I’m getting blood.

I also get my “suck the hormones out of me” shot – so I’m looking forward to another week of hot flashes and night sweats. SUCK!

What we are hoping for is that my ANC (the engine of my white cells) would be at 0.1 or higher.  That’s sort of the lowest it should be to hang out with people.  It was only 0.6 – so I’ve got 2 weeks more of kicking it at home and eating my restricted diet.  I have gone down some more lbs (lowest weight since Fall of 1992!) so perhaps this will get rid of a few more!  I’m getting lots of reading and coloring done.

I started back on one of my new medications last week (the one that gets rid of extra iron in my system).  It has the side effects of a) liver damage and b) bone marrow suppression.  My liver enzymes have almost tripled since I started taking the medicine and the doctors think that it might also be the reason that my ANC didn’t come up higher.

So I’m back OFF the medicine.   The other new med (the overdose med) is completely off the table until future  notice while we work on getting my ANC back up.  Good news is that it is moving in the proper direction, just not fast enough.

It was National Dog Day today (or yesterday as it is now 12:20am).  My favorite therapy dog, Chanel, was at the hospital:

img_20150826_104035_20281064754_o

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4 Comments on “Good news but not good enough”

  1. Lori says:

    Yay for blank test results!

    Booooo lymphedema!

    Booooo low ANC! Up with you!

    Yay for Chanel – she is the most gorgeous therapy dog I’ve ever seen – aptly named.

    Hoping the next two weeks fly by and your ANC boosts enough for normal life to resume again.

    Love you,
    xoxo

    Like

  2. Barbara DiCarlo says:

    Thanks for the update. Hopefully you will be able to party with us soon! Ciao, Barbara

    Sent from my iPhone

    >

    Like

  3. Joyce cushnie says:

    Great news from oncology!!!!

    Like

  4. elizabeth lamar says:

    How neat to greet a therapy dog! You are a slender gal. Wish we could go out to eat! Ha! Last Saturday Adam helped me with some chores then had to call Mimi’s and go pick up meals. I call this my Home Groan session.

    Like


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